Day of Prayer

Today, at 12:00 PM, was Spina Bifida Kids Worldwide day of prayer. That's a mouth full to say and write. So, where was I at this moment in time? In the shower! Our water bill may be a little more this month because of it!:) I am not sure how this all came about but I am thinking some moms of children with Spina Bifida who love Jesus got together and decided to declaire today as "SBKWDoP". However it happened, I like it. So... I have decided my first post back in a while I was going to let you in on private time with my Lord! So this is what He and I discussed in the shower.

I prayed to God:

For Mom's and Dad's who have just been told the baby they are carrying has spina bifida that He wraps his loving arms around them and gives them comfort and a peace to know that this baby is so very special and he/she will bring them a joy to their life that they can not even begin to imagine.

I prayed to God:

For the Doctors who are giving news to parents for the first time today that their baby will be

born with Spina Bifida to express this life changing news with knowledge, GRACE and compassion.

I prayed to God:

To Families who are raising children with Spina Bifida that he bestow love, patience, kindness, forgiveness, hope and understanding to all.

I prayed to God:

For our BinBoo that every one of his days are filled with laughter. As I am writing this I can hear Bin cracking himself up while playing with his sister. His laugh is contagious and his smile is a heart stopper for sure! All that Bin has gone through in the past and all that he will face in the future, I pray for him to find strength and have as little pain as possible. I pray for God to give Bin a passion in his heart to help educating others when they have questions regarding challenges he has to face daily and to know what makes him different are actually his strengths! Mostly I pray for a life full of happiness. That he will always be happy like he is every morning when he gets up until he finally passes out at night...with that beautiful smile on his face. Oh how I love my precious baby boy!

I prayed to God:

To give Jon and I kindness, forgiveness and understanding to others who see Bin as "different" and unaware of the physical issues Bin has NO control over. For patience when at the end of the day we are literally exhausted but still have to sit with Bin for 30 minutes to do potty time. Trying to be energetic and come up with different activities to keep him on the potty is mentally taxing at times, for him as well!:) For the age appropriate answers to give Oaxie as she has began to ask questions regarding Bin's uniqueness. (Why does he have to use a cath to potty, why can't he potty like all the other kids at school, why does he walk funny, why can't he stand like a big boy in the shower instead of sitting on the shower floor...) Lastly, I pray for Jon and I to remain strong in our love for each other. That even though the majority of our thoughts are filled with children, work, hunting :), and all that our lives have to bring that at the end of the day we have each other to lean on and love when our lives can seem so overwhelming!

Finally I had to give the Lord many thanks:

For allowing us to be parents to Bin and Oaxie

That Bin and Oaxie know who He is. When you ask them where God lives they say "in my heart." At Bin's last check-up he asked the doctor if she could hear God in there when she was listening to his heart!!

For the wonderful Doctors and nurses who have taken care of Bin

For our family who have dropped every thing in almost a moments notice and driven hours to be here for doctors appointments, surgeries, and just difficult times

Mostly for Bin's loving heart and his "overuse" of the words, I LOVE YOU!

Walk-N-Roll 2010

Go Bin Go!

Ethan, Bin & Gracie

Today was finally the day of the Walk-N-Roll for Spina Bifida! Every morning Bin would go to the calendar and count down the days until he would get to wear his new running shoes for the Walk-A-Thon! We are very excited to say that with all of our family and friends support we raised over $2000.00!!!! WOWZA!! We are so incredibly appreciative of how generous you all have been and you will never know how much that means to Jon and I. Thank you so much.

Walk-N-Roll for Spina Bifida

Hi All! Sorry I have been off for a while. I keep hearing from you that I need to get back on but life has been getting in the way here lately. So...here we go. Bin and the rest of the Wells Crew will be participating in his first ever Walk-A-Thon this month and all the donations are going to make a difference for those living with Spina Bifida. This is the first time ever this event is being held in the North Texas area and we are so excited to participate in this as a family. I'd like to invite you to join us in raising funds for the Spina Bifida Association of North Texas. Click the link below to see Bin's fundraiser page, where you can view his progress toward his fundraising goal for the upcoming Saturday, July 24th Walk-N-Roll at Burger's Lake in Fort Worth. Like almost every thing else we do...we are a little late at getting this up and going. Hopefully we can get a few donations before the event actually happens! Please consider sponsoring Bin's efforts today with a donation.
Together we can make a difference for those living with this neural tube defect!

My Page Link:
https://spinabifidant.myetap.org/WalkNRoll/individual.do?participationRef=3676.0.22452259

Thanks so much!

Oaxie the Pirate

Here are the pics of Oaxie in her pirate costume. She is still going between Pirate and Princess as of now. I guess for her school party she can be one and when we go trick or treating she can be the other!

What to be for Halloween?!?!

These pictures are for you Mom.:) To my FB friends, you have already seen these, but for everyone else, here are some Halloween pictures of the kiddos. My friend Shannon let us borrow some of her little girl, Mia's, costumes for Oaxie to try. She only tried one on, the Princess, and that was it. She did not want anything else. However, Bin was in the trying on mood. He posed for pics in every one of Mia's outfits, and of course I was able to get some perfect shots of him acting like a corn ball! Here you go...

Oh and a few days later Oaxie decided she did not want to be a Princess any more and now wants to be a pirate like Bin. We had to go get her a new costume after all. I was hoping not to have to buy one. However, costumes are all on sale at Target now and you get a free trick or treat bucket with every costume purchase! Will put new pictures of her up later once I download them.

A Night Out!!

This weekend we had a night out by ourselves. Well...not really by ourselves, just without the kids. I think I can count on 1 hand the amount of times Jon and I have done anything alone since the kids were born. It was so exciting that we had to take a picture! I know...crazy and very sad. It felt like prom night. Just no sparkling dress or tux! A friend of Jon's got married and my parents came down just for the night to watch Bin and Oaxie so we could go! Thanks Mom and Dad. I love you very much and thank you for all that you do for us and the little pooters!:)

Lake LBJ

Our own little beach!


Cowgirl Oaxie in her Granddaddy's boots!


Fun Times!

Granddaddy & Oaxie

Bin singing songs!

After a long day of fun in the lake...out like a light!

Last week we went on vacation to Lake LBJ. We stayed in a really great Lake House and had our own little private sandy beach all to ourselves. The Lake was shallow, almost all the way out to the middle, so it was perfect for us to play in. This was our first real vacation with Mommy and Daddy. Nana and Granddaddy came a long also. We were in the water all week and did not even get sunburned. Nana and Granddaddy did though! Poor Nana's back was so red she looked like a lobster. Thankfully, it did not hurt as bad as it looked. Mommy kept us lathered up with sunscreen because she did not want our pretty skin to get all freckled like hers, she said!:) We swam, fished, and tubed a lot. Mommy was not sure she wanted us to ride in the tube behind the boat but Granddaddy said he would pull us real slow and Daddy had to ride with us. The week went by too fast and we were not ready to leave. Hopefully we can try and go again next summer. It was a perfect time to relax and do absolutely nothing...just my kind of vacation!!:)